P284 Assessing Patient Experience in an Inflammatory Bowel Disease service. Can we measure an effect from socioeconomic deprivation – experience from the AWARE-IBD programme?

نویسندگان

چکیده

Abstract Background There is increasing international attention on delivery of services for people with Inflammatory bowel diseases (IBD). Experience care defined and measured as ‘what’ happened, ‘how’ ‘how often’ an important facet service provision. Socioeconomic deprivation may be associated poor disease-related outcomes sub-optimal utilisation but its effect experience in inflammatory disease has not been reported. Methods An invitation to participate a research study nested within the AWARE-IBD quality improvement programme was sent 4082 patients attending IBD at single UK teaching centre October 2021. A second May 2022 followed by telephone recruitment targeted those from most deprived deciles based index multiple (IMD), measure relative small areas England (‘lower-layer super areas’, approximately 1500 residents). Participants returned specific patient reported (PREM) via web application comprising 38 items across 3 domains: ‘My Care Team’, “What matters me’, ‘Living Crohn’s or Colitis’. Each item scored 1 (poorest experience) 5 (best experience). Median scores individual domain compared following demographic groups: IMD decile (1 = deprived; 10 least deprived), age, gender, type (ulcerative colitis disease). Results PREM responses were received 249/4,082 (6%) patients. Patients underrepresented respondents invited cohort (Decile 22/249 (9%) vs 667/4,063(16%) p=0.002) over-represented; Decile 10: 38/249 (15%) 379/4063(9%) p=0.002). Respondents otherwise broadly comparable terms gender type. did differ according between (Figure 1), Conclusion Measuring part improvement. No socioeconomic demonstrated. This finding conflicts literature links factors results should interpreted caution. greatest risk difficult elicit survey measurement. Instead, tailored engagement exercises are required including qualitative ethnographic approaches better understand impact experience.

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ژورنال

عنوان ژورنال: Journal of Crohn's and Colitis

سال: 2023

ISSN: ['1876-4479', '1873-9946']

DOI: https://doi.org/10.1093/ecco-jcc/jjac190.0414